The Norwegian Research Council
A growing research literature documents the effectiveness of Internet support and online patient-provider communication (OPPC) to improve patient-centred care and health outcomes. However, lack of knowledge and attention to factors important to implement efficacious interventions into the organizational contexts of clinical practice hampers translation into routine practice and highlights the need for studying real world use.
This international collaboration study will implement and evaluate the effects and use of an OPPC service as part of regular care where patients can ask questions and receive advice and support from care providers and social counsellors from NAV.
In Phase I we will identify patients needs, care providers requirements, organizational infrastructure, and use participatory design methods to adapt the OPPC service to the context of clinical practice. In Phase II two sequential cohorts will be followed with 5 repeated measures over 8 months to test the effectiveness of OPPC in regular care. Cohort 1 will receive usual care; Cohort 2 the OPPC service. We will include 260 patients per cohort with various diagnoses from heterogeneous practices to increase external validity.
Outcome measures are:
- participation rates and frequency of OPPC use
- symptom distress, self-efficacy, anxiety, depression and patient satisfaction with care
- health care utilization and cost-effectiveness of the OPPC service
- characteristics of high/low volume OPPC users, patient-caregiver communication and OPPC use patterns
- patients and care providers perceived usefulness and ease of use
- impacts on organizational change and interdisciplinary collaboration, including NAV
- OPPC maintenance
This study significantly contributes to the next step of research translation into practice by demonstrating and evaluating the real-world implementation of an innovative technology that can improve patient-provider communication, care quality and patient outcomes.
- Cornelia Ruland, PhD, Principal Investigator